tag:blogger.com,1999:blog-90553606331191378052024-03-14T01:05:22.958+00:00Gavin's JourneyWe created this blog to document our journey with Gavin (and all the Glynn Family) while he battled his fight against Embryonal Rhabdomyosarcoma (Soft tissue tumor)Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.comBlogger180125tag:blogger.com,1999:blog-9055360633119137805.post-13721276098782433702015-10-21T07:58:00.000+01:002015-10-21T07:58:03.865+01:00superhero in the skyOne year gone today.<br />
Though we are all still grieving and missing you ever second of the day their is one thing that will never be taken from us.. And that is the memories of all the happy times we had together. All the smiles and laughter your brought to us all.<br />
We all miss and love you so much buddy. Forever in our thoughts, hearts and dreams.<br />
You will never be forgotten.<br />
Love you buddy. Mum, Dad, Conor & Lucy xxxx.<br />
<br />
Big thanks to Robbie Doyle for writing and singing this beautiful song about Gavin (Superhero in the Sky).<br />
Thank you mate xxx<br />
<br />
https://vimeo.com/142997405<a href="https://vimeo.com/142997405" target="_blank">Superhero in the Sky</a>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com1tag:blogger.com,1999:blog-9055360633119137805.post-568396891259241192015-07-14T17:17:00.001+01:002015-07-14T17:17:22.022+01:00The Gavin Glynn Foundation Office<div><br></div><div><br></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><span class="">The Gavin Glynn Foundation office is coming together..</span></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br class=""><span class="">Big thanks to Nigel Elliott for converting Gavin's old bed into a desk. </span></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br class=""><span class="">The bed was made for Gavin a few years ago by John Killilea through Aoibheann's Pink Tie and we didn't want to get rid of it.</span></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br class=""><span class="">We're So delighted with how it has turned out. </span></span></div><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br class=""><span class="">Our buddy will be with us all the way while we help as many families as we can. </span><span class="text_exposed_show" style="display: inline;"><br class="">Now to buy office stuff</span></span></div><div><span class="text_exposed_show" style="-webkit-text-size-adjust: auto; display: inline; color: rgb(20, 24, 35); font-family: helvetica, arial, sans-serif; font-size: 14px; line-height: 19px;"><br></span></div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG0nFmY0v24obeIPTPfw9NfJ3PWgwbVx8gfWulb0uu59wxgiM2B3P-ORFGTRhnh_BmOibn4tKzoSERJbhUGWilFjqDMdwJxQnQkNm1bcqsXtkrez8oLZhyphenhyphen34kpW77YM0-qxpsdBHLkrKY9/s640/blogger-image--110264463.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG0nFmY0v24obeIPTPfw9NfJ3PWgwbVx8gfWulb0uu59wxgiM2B3P-ORFGTRhnh_BmOibn4tKzoSERJbhUGWilFjqDMdwJxQnQkNm1bcqsXtkrez8oLZhyphenhyphen34kpW77YM0-qxpsdBHLkrKY9/s640/blogger-image--110264463.jpg"></a></div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJwNNTAwtPMtRPMifdBYQW8DSzaS4D7RzBty3fsY8hHtaAvmtMEzt8u4ngdv22DO0IFqhm6Q-srfHCpX9X3U-HOHgBEfopHEAVXJBEJqFR2jXljwoMazsvsWurwpFUQkvNXk8XPnCOYSU5/s640/blogger-image-1488562305.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJwNNTAwtPMtRPMifdBYQW8DSzaS4D7RzBty3fsY8hHtaAvmtMEzt8u4ngdv22DO0IFqhm6Q-srfHCpX9X3U-HOHgBEfopHEAVXJBEJqFR2jXljwoMazsvsWurwpFUQkvNXk8XPnCOYSU5/s640/blogger-image-1488562305.jpg"></a></div>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com2tag:blogger.com,1999:blog-9055360633119137805.post-74659977625401592412014-12-24T08:20:00.001+00:002014-12-24T08:20:29.496+00:00<div class="MsoNormal">
We wanted to thank everyone who has supported and helped
Gavin and our family in 2014 and especially over the last few months since
Gavin has passed.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Christmas will not be the same for us this year and I don’t
think any festivities or anniversaries will ever be the same again, but we know
if Gavin was with us it would be filled with laughter and joy and happiness.
Conor and Lucy are now doing a great job of keeping us going and making us
smile.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We hope 2015 will bring much happiness. We have some very
exciting and busy plans ahead in setting up a foundation/charity to continue
Gavin’s Journey, and we hope that we can count on all your support so we can
help other children and families with cancer.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
So in Gavin’s memory we would like to wish everyone a very
healthy and Happy Christmas and New Year. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
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John, Jayne, Conor, Lucy and Super Gavin (shining down his
happiness from above).<o:p></o:p></div>
Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com2tag:blogger.com,1999:blog-9055360633119137805.post-57671531795198599932014-11-10T22:08:00.000+00:002014-11-10T22:08:53.139+00:00Monday- Start of a new week..<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">I thought I would get back to writing the blog
again as it really helped me vent and tell what was on my mind while Gavin was
in treatment.<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">The last few weeks have not been easy on any of our
family. In the last 7 weeks we have lost my uncle, Gavin and then last week my
aunt (who was married to my uncle who also passed) all to cancer... and all on
a Tuesday, which is bizarre..<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">I think we have all had our share of people passing
for now.<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<br /></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">How do I feel, a few words come to mind. Lost, Sad,
Empty, angry, denial...and many more. <o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">We go to see Gavin every day, and every day I just
stare at his grave and cry and wonder why and how this has happened and I know
I may never have these answers but I will still keep asking them.<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">I know we must pick ourselves up and continue on
that is what Gavin would have wanted. He hated anyone being a "wuss"
as he called it...:)<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<br /></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">Going out and meeting people is hard because some
people don't know how to react around you. I know I am probably guilty of this
myself in the past but we have now analyzed people’s reactions to our family
and my extended family. <o:p></o:p></span></div>
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</div>
<ul>
<li><i>People Tilt their heads to the side when the see
you or talk to you. </i></li>
<li><i>"Are you sleeping"... </i></li>
<li><i>"Are you eating"...</i></li>
<li><i>Rub your arm or back for some reason while
talking to you with their tilted head.</i></li>
</ul>
So my advice to people going forward no tilty head
or rub arms (you know what the answers to the questions are so please don't
ask)...<br />
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<br /></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">Last week Lucy woke upset one night and was crying
saying she didn't want to go asleep, as she was afraid she wouldn’t wake up
just like Gavin. Jayne and I explained that Gavin was very sick and not to
worry but we felt so bad she had these thoughts. We all speak about Gavin as
much in our daily lives and so do Conor and Lucy who we hope will help but we
will keep a close eye on them from now on.<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<br /></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">It is very hard to try and keep busy since all our
time was hospital or caring for Gavin. What was normal life that is the big
question as the last 3 years have been so full on. <o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">For now I try and plan out daily tasks even 1 thing
that needs to be done, that way I can keep focused.<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">Jayne and I have decided to start back training
this week, which will help us both mentally, and physically in time...<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">We are also going to continue in Gavin's name and his
legacy of helping others, which will be amazing. <o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<br /></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">All we can do is take 1 day at a time, and see what
it brings. We have many challenges ahead that's for sure but we are not alone,
we will never be alone, we have one very bright star shining down on us that’s
for sure.<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<br /></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">Sleep well buddy, we all love and miss you so much<o:p></o:p></span></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<br /></div>
<div class="MsoNormal" style="mso-layout-grid-align: none; mso-pagination: none; text-autospace: none;">
<span style="font-family: Times;">xxxx<o:p></o:p></span></div>
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<br />Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com8Kilcoole, Co. Wicklow, Ireland53.1063 -6.064499999999952727.584265499999997 -47.373093999999952 78.6283345 35.244094000000047tag:blogger.com,1999:blog-9055360633119137805.post-90353733774109456052014-10-31T19:27:00.000+00:002014-10-31T19:27:03.202+00:00<div class="MsoNormal">
We didn’t get a chance to thank everyone last week, but we
now wanted to acknowledge how amazing you all are.<o:p></o:p></div>
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As we now know Gavin’s mission was to bring happiness,
strength, courage and to “never ever give up” and most of all to bring people
together. We have seen all of this through our journey and the places it took
us to get Gavin the best possible treatment at home and abroad.<o:p></o:p></div>
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<br /></div>
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We would like to thank The Laura Lynn foundation and The
Irish Cancer Society night nurses and the local Palliative Care Team for being
there and helping us while Gavin was at home over the last few weeks.<o:p></o:p></div>
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To all our dear friends and family, you have been such a
great support for the last 3 years.<span style="mso-spacerun: yes;"> </span>To
the amazing hospital staff, both here and abroad who looked after Gavin.<span style="mso-spacerun: yes;"> </span>To the community of Kilcoole, Greystones and
Ireland, the love and support that was shown last Friday from when we left our
house in Kilcoole was breathtaking. From all the yellow and gold ribbons to the
schools and children and adults that lined the streets, to An Garda Síochána for
your professionalism and respect towards Gavin, Greystones Fire Brigade who
Gavin loved so much, Mr. Willie Doyle who made the whole process of the funeral
arrangements the most hassle free process and most beautiful, to Christy and
Conor for decorating Gavin’s coffin in his superman sign, our extended new
family in Texas and Florida we thank you, and last but not least Aoibheann’s
Pink Tie…You have been there all the way and continue to be our rock. We love
you all xxxx. <o:p></o:p></div>
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We will now take time to ourselves, and then we will come
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Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com0tag:blogger.com,1999:blog-9055360633119137805.post-58539924195468159392014-10-22T00:33:00.002+01:002014-10-22T00:33:42.399+01:00Rest in peace our beautiful baby<span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">Rest in peace our beautiful baby. You fought the hardest fight anyone could imagine and all the way to the end. You are and will always be our Superman. Gavin passed very peacefully tonight with Conor, Lucy myself and Jayne holding hands on our couch at home. Fly high buddy we all love you so much xxxx</span><br />
<span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>
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<span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com12tag:blogger.com,1999:blog-9055360633119137805.post-68777542542485873122014-09-24T00:21:00.000+01:002014-09-24T00:23:12.638+01:004 weeks back in Ireland this fridayIt's hard to believe that this Friday we will have been back home in Ireland 4 weeks.<br />
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So much has happened but it still feels so weird being back. Its great to have family and friends around again which has been a great help to us in the current situation. </div>
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Today we got to leave Crumlin for a few hours so we were able to bring Gavin home. This was the first time all 5 of us have been under the same roof in a very long time…Being in the same room and having dinner together was just amazing. The things we have all taken for granted before now all seem such a luxury and just make you realise how precious all these moments are.</div>
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Long days and nights in hospital have really taken it toll on us for the first time in nearly 3 years since Gavin was diagnosed.. we are wrecked. Sleep or lack of it really is a form of torture. The normal routine at the moment is one of us stays with Gavin every night, a couple of feet away from his bed. As many other parents will know that have had to spend time in hospital is that you just don't sleep. Between the BEEPS of the IV Monitors or nurses checking your child you have to be semi alert in case your child needs you. Also the sleeping arrangements change from ward to ward. We have a lazy boy chair which is luxury compared to what some other rooms and wards have. Some parents sleep on the floor with a so called 'mattress' (which is about 3" off the ground) or in a chair beside their child. But to be honest if I had to stand in the corner on one leg I would do it just to be beside Gavin. <i>Steve Jobs will never know how much he has made people lives easier:) thank god for iPads and Netflix thats all I say…</i></div>
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So we rotate every other night to go home to our house and have a good night sleep in a bed and spend time with Conor and Lucy and my god is that good….I'd say it takes me less than 1 minute to be fully asleep once my head hits the pillow.</div>
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I read something a while ago that said you can never catch up on lost sleep no matter how long you sleep for when you can, I really believe that now…</div>
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But if you wake during the night it is hard to get back again. You head plays havoc with you, well mine certainly does. No matter how much you try and re focus on "happy thoughts" the bad ones still seem to win over. </div>
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Last week 2 children who were patients in St. John's Ward lost their battle with Cancer. One was 14 and the other was just 6 years old. I also lost my uncle to cancer last week so overall you could say that it was a bad week.</div>
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Cancer effects us all, nobody is immune to it, no family has not had someone either treated or lost to it. </div>
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It still baffles me every day the amount of money spent on research worldwide and their is still no cure.</div>
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Are we getting closer I really hope so…</div>
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So tonight I sit here, back writing the blog again, pondering on the last few weeks and months. Gavin is happy watching some movies, what time he will sleep or I will sleep is anyones guess, but whenever I will close my eyes I know that I am thankful for a great day today with my family and pray Gavin, Conor Lucy & Jayne will sleep well tonight and whatever tomorrows challenges brings we will face them together, as a family…and as a team.</div>
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As comedian Clive Allen always said '<span style="background-color: white; color: #545454; font-family: arial, sans-serif; font-size: x-small; font-weight: bold; line-height: 18px;">Goodnight, and may your God</span><span style="background-color: white; color: #545454; font-family: arial, sans-serif; font-size: x-small; line-height: 18px;"> go with </span><span style="background-color: white; color: #545454; font-family: arial, sans-serif; font-size: x-small; font-weight: bold; line-height: 18px;">you</span><span style="background-color: white; color: #545454; font-family: arial, sans-serif; font-size: x-small; line-height: 18px;">'</span></div>
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Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com2tag:blogger.com,1999:blog-9055360633119137805.post-83556275804867109232014-09-13T08:07:00.001+01:002014-09-13T08:07:21.678+01:00Update on Gavin<p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">Sorry for not updating everyone, we wanted to wait until we were back home and settled.<o:p></o:p></span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">We arrived back home 2 weeks ago today. Once Gavin was comfortable after his operation in Arnold Palmer hospital, the staff and Make a Wish arranged an air ambulance to take us back home. Gavin was very happy to travel in a plane in his bed and was very comfortable all the way home thanks to JET ICU for the great trip. We were so well looked after by all the doctors, nurses and play specialist staff in Arnold Palmer and have made many friends so we thank you all for your help during our stay.</span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><o:p></o:p></span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">We were then picked up in Dublin airport by BUMBLEance and brought to Crumlin hospital with Gavin’s Gardai friends in front as they wanted to welcome him home. We have spent the last 2 weeks in the ICU Ward as Gavin had another operation last Monday. The surgical team and all the nurses have been amazing and really looking after Gavin very well.</span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><o:p></o:p></span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">We are now out of ICU and in another ward. Gavin is in great form as always and doing well. He is sitting up watching lots of DVD’s and keeping all the nurses entertained and me and Jayne…bossing us around which is great to see.</span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><o:p></o:p></span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">The plan now is for the surgical team to monitor Gavin over the next 10 days and see how everything is going and then hopefully we will be able to go home.</span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><o:p></o:p></span></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><o:p> </o:p>As always Gavin is surprising everyone with how strong and resilient he is. Thanks so much to everyone for all your messages and prayers keep them coming and our little SuperHero will be back flying around again soon.</span></p><div><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"><br></span></div><p class="MsoNormal"><i style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);">“We would ask that any online or press media to be mindful of what quotations you print please as we need to be careful of Gavin’s brother and sister and what they can read”.<o:p></o:p></i></p><p class="MsoNormal"><span style="-webkit-text-size-adjust: auto; background-color: rgba(255, 255, 255, 0);"> </span></p>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com0tag:blogger.com,1999:blog-9055360633119137805.post-19130778137039919392014-08-24T13:49:00.001+01:002014-08-24T13:49:11.351+01:00Update on gavin<span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">After being admitted for an infection last week, Gavin had a scan which showed new tumour growth in his pelvis and also in his lungs. The team believe that there must have been microscopic cells growing / hiding in his pelvic bone and his lungs, that were totally undetectable by the MRI or CT that he had immediately before his surgery. Obviously, had these been identified prior to surgery, the te</span><span class="text_exposed_show" style="background-color: white; color: #141823; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">am would not have proceeded with the surgery and HIPEC treatment.<br /><br />These aggressive new tumours have already grown rapidly and have caused blockages in Gavin's abdomen.<br />We travelled to Orlando on Sunday as Gavin was granted a trip to Disney World for the family, by "Make a Wish".<br />But unfortunately he had to be brought by ambulance to the Arnold Palmer Hospital in Orlando before we could get to the park, with abdominal complications. He has had surgery and is currently recovering in ICU.<br /><br />We are not sure how long he will be in the hospital but our aim now is to get him well enough to travel home to Ireland.<br /><br />Once we know what is happening next we will be able to update everyone again. Thanks everyone for your support and prayers.</span>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com1tag:blogger.com,1999:blog-9055360633119137805.post-88817868684191043812014-08-07T17:48:00.002+01:002014-08-07T17:48:17.446+01:00Calling for people to join TeamGavinGlynn for this years Dublin City Marathon<div class="MsoNormal">
Team Gavin Glynn are taking on the DCM for the third year in
a row. This year more than ever we are looking for support and looking to
runners to join the Team for the DCM and run, walk or crawl around streets of
Dublin this October. Hard to believe Gavin is only gone 4 and this will be his
third marathon in support of his fight…. <o:p></o:p></div>
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Gavin as you know is undergoing extensive life saving
treatment in the US at the MD Anderson Centre in Texas, while Gavin is doing
what he does best and kicking cancers ass, he still needs continued support on
his own marathon road to recovery. It literally is a case of it being a
marathon and not a sprint unfortunately, with more chemotherapy, more scans and
regular quarterly appointments back at MD Anderson once the guys have come
home. <o:p></o:p></div>
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So if you are planning or even contemplating taking part in
the best marathon in Europe that is the Dublin City Marathon this October and
want to support a real life Superhero in the process please get in touch, we
would love to have you on board Team Gavin Glynn.<o:p></o:p></div>
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Team Gavin Glynn DCM 2014!! <o:p></o:p></div>
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Email: pegmanlynda@gmail.com, robmoran77@gmail.com,
phelim.lynch7@gmail.com<o:p></o:p></div>
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Text: Lynda (0879823516) (Rob) 0863850129 (Phelim)
0834477933<o:p></o:p></div>
Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com0tag:blogger.com,1999:blog-9055360633119137805.post-84249922851175815682014-08-07T02:49:00.002+01:002014-08-07T02:49:46.566+01:00Leaking Tube<div class="text_exposed_root text_exposed" id="id_53e2da56b70f77f33899980" style="display: inline;">
While changing Gavin's dressings yesterday we noticed one of his tubes was leaking..So we called the hospital and also showed them a video we took of the leak.<br />So this morning early start 6am we were all up and into the hospital. Gavin had<span class="text_exposed_show" style="display: inline;"> to be sedated so the tube could be replaced so he had to fast and no liquids from last night.<br />He's all good now and just about to leave he's happy that his super brother and sister are here minding him.</span></div>
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<tr><td class="tr-caption" style="text-align: center;">Gavin's BodyGuards:)</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidbKr2s9EP-1IPgYBHMCDfD_RtBSaAotNjyOF4u6eziM7ACDi2fimC7DMeUPNZU-8rCd3XB9PjP_H21JmAYG07bvKt-6P96241267Qz1HBD2GxmfG6xddD89BeSv-PJsvYHPpXgpfscxHj/s1600/10348191_707395132647582_1311332515963653149_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidbKr2s9EP-1IPgYBHMCDfD_RtBSaAotNjyOF4u6eziM7ACDi2fimC7DMeUPNZU-8rCd3XB9PjP_H21JmAYG07bvKt-6P96241267Qz1HBD2GxmfG6xddD89BeSv-PJsvYHPpXgpfscxHj/s1600/10348191_707395132647582_1311332515963653149_n.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Awake and all ready to leave</td></tr>
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<span class="userContentSecondary fcg" style="background-color: white; color: #9197a3; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com0tag:blogger.com,1999:blog-9055360633119137805.post-2935621747899802512014-07-29T23:37:00.000+01:002014-07-29T23:38:12.773+01:00We are now outpatients wooohoo<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">Just to let you all know we got discharged from the hospital yesterday wooohoooo. They are happy to let us leave and for Gavin to start his recovery outside of the hospital. He still has a tear in ureter and bladder, so he has 3 drainage ba</span><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">gs on until they heal. We have been trained up on how to manage them ourselves.<br /><br />We have a job to do and build him back up now to his old chubby self again, but we can do this much better outside the hospital.<br /><br />We have also just moved into a rented apartment, which is close to the medical center so we have a bigger space.<br />And the best news of all is that Conor and Lucy are coming over this Friday…WOOOOHOOO. Jayne’s sister Deborah is flying them over.<br /><br />We miss them so much. It’s been nearly 6 weeks now, and even though we speak every night, it’s just not the same. We cannot wait to see them, my god they will be killed with love and hugs they will not know what hit them:)<br /><br />So the plan for now is to have regular visits to the hospital for checkups and check how Gavin's bladder and ureter are healing. We cannot start his chemotherapy until they are healed better. We are unsure yet if he will require more surgery to fix them.<br /><br />So at long last we are now on the road to recovery and, more importantly, back on the road home to Ireland.<br /><br />We are missing everyone back home a lot especially all our friends and family, but we are being well looked after by our extended Houston Irish and Police families, they are amazing support to us.</span><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgnrz-KYFrg3qzRfe7shRAkezQudBd8Qikxh0zK2PvilVdBpNO4xvVu1aiJyrqvGb1uwE8MhUFregfRzrcNkKpkvhxoUsp5e_KtNm_GgPBYWCwJXEICgTUa8QRiod30WspktCiVB1nvqqZ/s1600/IMG_1114.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgnrz-KYFrg3qzRfe7shRAkezQudBd8Qikxh0zK2PvilVdBpNO4xvVu1aiJyrqvGb1uwE8MhUFregfRzrcNkKpkvhxoUsp5e_KtNm_GgPBYWCwJXEICgTUa8QRiod30WspktCiVB1nvqqZ/s1600/IMG_1114.JPG" height="320" width="302" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gavin when we told him we were leaving the hospital</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs-N_N2MqMMY0nQhWrGdDPJ6kYPCScHW26CvDnaxNPFv_Qybs4_8xqG_WE4EUKGSaKFJgAzexLtsAdGuq0CbEOG3HcNHICVlpzeVLU2e_NRi7bb6RLYBP-ukoJcg9x-_F8t3VWNlh9Q7vp/s1600/IMG_1136.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs-N_N2MqMMY0nQhWrGdDPJ6kYPCScHW26CvDnaxNPFv_Qybs4_8xqG_WE4EUKGSaKFJgAzexLtsAdGuq0CbEOG3HcNHICVlpzeVLU2e_NRi7bb6RLYBP-ukoJcg9x-_F8t3VWNlh9Q7vp/s1600/IMG_1136.jpg" height="266" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gavin and me chilling in our apartment </td></tr>
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<span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com1tag:blogger.com,1999:blog-9055360633119137805.post-64715870115209908062014-07-29T15:58:00.004+01:002014-07-29T15:58:23.108+01:00Childhood Cancer<div style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px; margin-bottom: 6px;">
Childhood cancer</div>
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Our children are our angels,<br />A true gift from up above.<br />From the moment that we see them,<span class="text_exposed_show" style="display: inline;"><br />Our world is flooded by love.</span></div>
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In life now all that matters,<br />Is their safety and their health.<br />Not everything that came before,<br />Like sleep, nights out or wealth.</div>
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Then suddenly from out the blue,<br />A bolt falls from the sky.<br />Your family life just falls apart,<br />And you can't help wonder why?</div>
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An existence you knew nothing of,<br />Suddenly , becomes the norm.<br />You forget what life was like before,<br />You walked into this terrifying storm.</div>
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You sit beside your baby,<br />Feeling helpless as can be.<br />As nurses fight to help them,<br />And you pray a silent plea...</div>
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Why is this happening?<br />What can I do?<br />How do I take this pain<br />and suffering from You?</div>
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The truth is there's nothing,<br />We as parents can do.<br />But support and gain strength,<br />From the childhood cancer crew.</div>
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For many their battles,<br />are far too relentless and long,<br />As they pray that they will one day,<br />Be free from cancer's evil throng.</div>
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We are thankful for survivors,<br />Those children who've won the war.<br />But we remember those who fly high above,<br />through the skies they soar.</div>
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There's many that still believe,<br />that "this won't happen to me!"<br />But the day before my child was ill<br />I too had failed to see...</div>
<div style="margin-bottom: 6px; margin-top: 6px;">
That childhood cancer happens.<br />It doesn't care, who it strikes next.<br />But please be aware of its poison,<br />And it's poisonous effects!</div>
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These children and their families,<br />Fight their battles hand in hand.<br />We will one day discover a cure,<br />And united we will stand!</div>
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Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com1tag:blogger.com,1999:blog-9055360633119137805.post-87040866544476804912014-07-19T03:02:00.001+01:002014-07-19T03:02:33.564+01:00Not an easy week for Gavin<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">So much can happen in a space of a few hours and days..</span><br style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;" /><span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">After our last update of Gavin walking in the hospital he became unwell.</span><br style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;" /><br style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;" /><span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">His tummy became swollen again and we didn’t know why. The medical team checked Gavin and found that there was</span><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"> a problem with one of the tubes that was draining the urine from his bladder. This caused a build up of urine back into his urethra and then spilled out through a small tear into his stomach.<br />The pressure caused Gavin to not breath properly and this then caused fluid on his lung.<br />As you can imagine, we became very scared but the medical team dealt with it as soon as they could.<br />Gavin was then scheduled to have an operation on Monday to place a tube into his lung and also into his stomach to drain of the fluid and urine that had built up.<br />We were upgraded again into the ICU department so they could keep a constant eye on Gavin.<br />All week the new tubes have been removing fluid but the medical team thought it would be better to drain off the urine from the kidney which would give his tummy and urethra time to heal, so today Gavin had another procedure to insert a tube into his kidney called a “Nephrostomy”. This was done today at 4pm and Gavin is now comfortable. He will have a few tubes now until everything is back working as normal again.<br />It has been a huge rollercoaster week for us and not something we, or anyone thought would happen but it did. But we hope we are over the worst of it now so back to Gavin’s recovery and building him back up and walking again.<br /><br />We have had lots of support this week from our Irish friends in Houston and the HPD (Houston Police Dept) who have been in to check on Gavin ever other day so that has really helped us.<br /><br />And today we received some cards and presents form home which couldn’t have come at a better time.<br />Below Gavin’s new Fairy Door from (The Fairy Door Company in Ireland), which he named “Max”, arrived and is a great addition to his hospital room. He also got some lovely get well cards (one from his girlfriend Niamh which made him smile ) and 2 massive posters that a man called Joseph Mc Corvey dropped in.<br />He put all the get well wishes from his friends all over the world sent to Gavin on a poster…it’s really amazing to see where people are sending message from. Lots of love in the world for our SuperGavin we really appreciate it.<br />We are all looking forward to watching our friend Conor Mc Gregor win his fight tomorrow, that will put us all in good spirits</span><br />
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<span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br /></span>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com0tag:blogger.com,1999:blog-9055360633119137805.post-43410788662620837352014-07-13T21:13:00.000+01:002014-07-13T21:14:36.147+01:00look who is up walking around..Look who's up walking….Over the last few days Gavin has increased from 20 steps to 50 steps and then today walked all the way to the playroom and also most made it back again. He is still very sore but we need to push him a bit now to get up and moving. We knew he could do it, and he sure did.<br />
They have started Gavin on IV Food now too which is getting pumped directly into his tummy and he is taking it very well so tomorrow we will try introduce some solid food in small pieces and see how that goes.<br />
The medical team are very happy with his progress and recovery so far which is great news. They took off his dressings yesterday so we have seen the stitches down his chest. It is big but very clean and Gavin doesn't mind it.<br />
Every day he is getting stronger and stronger and by next week he will be running down this corridor.<br />
<br />
<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">The last picture shows a bell in the Children's Cancer Ward, its just brilliant and cannot wait for Gavin to ring it.</span><br />
<br />
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<br />Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com7tag:blogger.com,1999:blog-9055360633119137805.post-18664341082051292332014-07-09T04:24:00.000+01:002014-07-09T04:26:34.543+01:00Miracles do happen..<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">We are in ICU department now with Gavin. We are so happy to share some good news with everyone for a change.</span><br style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">The Amazing Surgeon Dr Hayes Jordan and her team were able to remove both tumors from Gavin's pelvis and also preform the HIPEC Tre</span><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">atment as planned.<br>We had been told that Gavin's bladder and Colon would have to be removed and he would have 2 permanent bags but when they went in they were able to get them out without touching the bladder and colon.<br>We really believe what has happened today is a miracle and it is down to everyone's prayers and positive thoughts being answered for Gavin and the medical team involved, for that we cannot thank everyone enough..<br>We still have a long road ahead in the coming days and weeks and months to make sure everything is gone for good but for now everyone should know how happy we are and it is all with your help, donations, support,<br>Prayers and positivity that our boy Gavin is with us today. Thank you to each and every person...sending you all our love and thanks John, Jayne and SuperGavin.</span><div><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><br></span></div><div><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqf7617zisoupqaX_IzaH-Yz95pT8hRPc7Q20eO3pjFfj_iOVtinz_79HzqVOaE4dTakP4R3nD5YQN374QkN6YKPnFjYo80cJKg317YwHdY4W-pPtJPqobBH7NZxBGdQVVjDohkKgl6Fxf/s640/blogger-image-1058446398.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqf7617zisoupqaX_IzaH-Yz95pT8hRPc7Q20eO3pjFfj_iOVtinz_79HzqVOaE4dTakP4R3nD5YQN374QkN6YKPnFjYo80cJKg317YwHdY4W-pPtJPqobBH7NZxBGdQVVjDohkKgl6Fxf/s640/blogger-image-1058446398.jpg"></a></div><br></span></div><div><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">Just before going into Operating room</span></div><div><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNf0Bf8WtbXBRvJh_UeMEt9l1OK6tPHUbSje5d6WRNKJIagRdTWZfl616ICS1Skj5CCFQd2ytO3UI315GjGpMB0SudydRhPgtd5njQdQnqCh2ZUQzbM57MhMlzTx-VTFmN7qkGZn7R3SsY/s640/blogger-image-1148145954.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNf0Bf8WtbXBRvJh_UeMEt9l1OK6tPHUbSje5d6WRNKJIagRdTWZfl616ICS1Skj5CCFQd2ytO3UI315GjGpMB0SudydRhPgtd5njQdQnqCh2ZUQzbM57MhMlzTx-VTFmN7qkGZn7R3SsY/s640/blogger-image-1148145954.jpg"></a></div><br></span></div><div><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;">Resting in ICU after nearly 11hours operation</span></div><div><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjopjA0jyMvy30YrHB6Z6kcd8d2QFy17C9JHiP6BNIXWZInHfchNaQ53z-XD8qW4NlBOJJp0FiXtd8630lLn59Gy7A6TixJjE2X6lhN8RpcvOv6Vbibkby_Q3jM6sY32GyAkJjEP6tk8QzO/s640/blogger-image--1582860596.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjopjA0jyMvy30YrHB6Z6kcd8d2QFy17C9JHiP6BNIXWZInHfchNaQ53z-XD8qW4NlBOJJp0FiXtd8630lLn59Gy7A6TixJjE2X6lhN8RpcvOv6Vbibkby_Q3jM6sY32GyAkJjEP6tk8QzO/s640/blogger-image--1582860596.jpg"></a></div><br></span></div>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com8tag:blogger.com,1999:blog-9055360633119137805.post-29616139482282515982014-07-07T02:55:00.002+01:002014-07-07T02:55:44.263+01:00Our last night together for a few weeks<div class="MsoNormal">
Well Gavin has just gone asleep, this will be our last night
sleeping together for the coming weeks.<o:p></o:p></div>
<div class="MsoNormal">
The last few days have been hard as Gavin has had some pain.
We found out from the MRI scans that the tumor has grown since we were at home
and is pressing against his bladder and nerve on his leg, so this has caused a
lot of discomfort over the last few days.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Tomorrow we will be admitted to the hospital for 8am, and
then Gavin will need to drink 2ltrs of a solution which will clear out his
system in preparation for surgery on Tuesday morning.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We have been told that the surgery is now more complicated
than we first thought and will take between 10-12 hours. Jayne and I will take
turns staying with Gavin every night and both of us will be with him every day.
He will be in ICU after the operation for at least 1 week.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We have some long hard and scary times ahead of us but we
will be strong for our little Superhero Gavin. This is his and our biggest
battle so far and we will win…<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We know we have everyone behind us which gives us massive
strength to battle the fight ahead. <o:p></o:p></div>
<div class="MsoNormal">
We want to thank everyone your kind messages and support at
home and in Houston everyone has been amazing to us.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Please keep Gavin in your prayers and thoughts over the coming
days and we will update everyone once he returns from surgery.<o:p></o:p></div>
<div class="MsoNormal">
Sending all our love, TeamGavinGlynn all the way… John.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
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<div class="MsoNormal">
Kisses from Gavin (after having a blue Candy Floss)<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVU9QUc2s6NkgcpinICpPFNV3l0iVcM1mfm0iqJMKEIKSAfBGnnu9uGAfE3x-sxK6lmVwRCzniGWhwfeauFW_UpUYMWMNcw_L4B5QhIqWAJ82JXCjEfDE5uiDEmwZL7Qe2sHBvKkSibGkb/s1600/IMG_0429.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVU9QUc2s6NkgcpinICpPFNV3l0iVcM1mfm0iqJMKEIKSAfBGnnu9uGAfE3x-sxK6lmVwRCzniGWhwfeauFW_UpUYMWMNcw_L4B5QhIqWAJ82JXCjEfDE5uiDEmwZL7Qe2sHBvKkSibGkb/s1600/IMG_0429.jpg" height="320" width="199" /></a></div>
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<br /></div>
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<br /></div>
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<br /></div>
Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com5tag:blogger.com,1999:blog-9055360633119137805.post-48224153796164719752014-07-02T02:55:00.000+01:002014-07-02T03:26:39.417+01:00Not a good day today<span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;">Well today didn't go as planned</span><span style="color: #141823; font-family: Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif;"><span style="font-size: 14px; line-height: 19px;">…</span></span><br>
<br style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;">We had arranged a day with the Sheriff Department with Gavin but when he woke this morning he wasn't feeling well. His stomach was very bloated and as the morning went on it just got worse and worse. He had serious pains and was screaming and crying which isn't like him at all. </span><br style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;">We ended up taking Gavin into the emergency room as it got so bad .</span><br style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;">They kept us in for the day and took some X-rays and it seemed like a build up of gas, sounds crazy my god he was in so much pain we didn't know what was wrong with him. It could also be from all the new food, So we got some medicine now for the next 48 hrs which will hopefully get rid of it and the pains. </span><br style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;">Tomorrow we meet the Surgeon to discuss the plan for next week.</span><div><font color="#141823" face="Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif"><span style="font-size: 14px; line-height: 19px; background-color: rgb(255, 255, 255);"><br></span></font></div><div><font color="#141823" face="Helvetica, Arial, lucida grande, tahoma, verdana, arial, sans-serif"><span style="font-size: 14px; line-height: 19px; background-color: rgb(255, 255, 255);">Jayne trying to keep Gavin's mind off the pain<br></span></font>
<span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuQakskNdsN11WDrGyVMyK4EN1wJ5iSFYy_oKqoDHrDHXW0wDCr-zna3Vdd9DXnp-8I_yhb9PqS6R7IUdBRhJC3_RsUdy4pVLTDFY4-bOA7q5Nqf9VvTzu_Y8Z4zQ6WKH09dMXJ-Jhdzm7/s640/blogger-image-2076457450.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuQakskNdsN11WDrGyVMyK4EN1wJ5iSFYy_oKqoDHrDHXW0wDCr-zna3Vdd9DXnp-8I_yhb9PqS6R7IUdBRhJC3_RsUdy4pVLTDFY4-bOA7q5Nqf9VvTzu_Y8Z4zQ6WKH09dMXJ-Jhdzm7/s640/blogger-image-2076457450.jpg"></a></div><div><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><br></span></div>Gavin fell straight asleep after his X-ray <br></span>
<span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><br></span></div><div><span style="background-color: white; color: #141823; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 19px;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt5BDNil0W_e_BFSEP1w57Fri7hX5qOcLmzHLsQjPhzBUeBJjD1c8muyCsGGapik9YIWxh1iETvEmwc3zT3QSD3Pv20ntZOrNzSEffuSjqD0TviLXXhRwdO6o2U6ZxzW2eo4hGDsbf67C1/s640/blogger-image-612827516.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt5BDNil0W_e_BFSEP1w57Fri7hX5qOcLmzHLsQjPhzBUeBJjD1c8muyCsGGapik9YIWxh1iETvEmwc3zT3QSD3Pv20ntZOrNzSEffuSjqD0TviLXXhRwdO6o2U6ZxzW2eo4hGDsbf67C1/s640/blogger-image-612827516.jpg"></a></div><br></span></div>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com2tag:blogger.com,1999:blog-9055360633119137805.post-21779776874285842182014-06-27T03:44:00.000+01:002014-06-27T03:44:11.255+01:00MRI and X-Ray today<div class="MsoNormal">
We had a rough night last night before we even got up. Gavin
woke about 3am looking for a bottle and a drink but we couldn’t give him
anything as he had to fast from 12am. He wasn’t happy at all and it took a long
while for him to settle back down again. We hate not being able to let him
drink or eat especially when we are trying to build him up as much as possible
for the coming weeks procedures.<o:p></o:p></div>
<div class="MsoNormal">
Then we were up at 6 am, as we had to be in the hospital for
7am for our first appointment, then down to the MRI department for 8am.<span style="mso-spacerun: yes;"> </span>We tried to entertain Gavin as much as
possible to keep his mind off thinking about food or drink, very hard but we
are used to it now. <o:p></o:p></div>
<div class="MsoNormal">
Only one of us could bring him into the MRI room so we
normally take it in turns so I went in today. Gavin was great and knows the
“milky medicine” will make him go asleep, he doesn’t mind it, and actually he
likes it, which is a bit scary.<o:p></o:p></div>
<div class="MsoNormal">
He took out his Central Line himself and gave it to the <span style="mso-bidi-font-weight: bold;">anesthetist, and within 30 seconds he was
asleep. I held him in my arms and just spoke to him until he was fully under
then gave him a big kiss and told him I loved him.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="mso-bidi-font-weight: bold;">Gavin was under for
about 1:45mins then he was in recovery for another hour. He was very groggy
when he woke and took a long while to come full around. He also had to have an
x-ray on his chest. Then we got back to the hotel about 3pm.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="mso-bidi-font-weight: bold;">Since he was so good
after a really hard day we went and got him some presents.<o:p></o:p></span></div>
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<div class="MsoNormal">
<span style="mso-bidi-font-weight: bold;">2 more appointments
tomorrow but we should be finished by 1pm which will be good as there is a
surprise in store for Gavin tomorrow…. he is having a visit by some of
Houston’s finest Police Force.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="mso-bidi-font-weight: bold;"><br /></span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-HMLHdX5s2xA6rBCVc94OiEAj1DS1xl6WmzkSpUHUMFPBizsxP2bR1Kj07reBSWAXVtSbonzUnx8u-uBiiZuraO1kGIbnW3KURxw-inr7yVlXFdZ5KxXjJE1D34EhXE5jjt8powMmHxer/s1600/IMG_0048.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-HMLHdX5s2xA6rBCVc94OiEAj1DS1xl6WmzkSpUHUMFPBizsxP2bR1Kj07reBSWAXVtSbonzUnx8u-uBiiZuraO1kGIbnW3KURxw-inr7yVlXFdZ5KxXjJE1D34EhXE5jjt8powMmHxer/s1600/IMG_0048.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Bit of messing before Gavin's MRI</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMnQP4T3ngkUHSz56ilrERtX7B0vjw0J1bhKOY_mMkyT4msHCRgVJRqibbFDFEpjItkZvmB6Dkbk-4dkxronhBLz8SCcyiOnNsdHyLSkeT06YN8RtTJuRjY6LdP3dTIl2-erVZiK2criOO/s1600/IMG_0049.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMnQP4T3ngkUHSz56ilrERtX7B0vjw0J1bhKOY_mMkyT4msHCRgVJRqibbFDFEpjItkZvmB6Dkbk-4dkxronhBLz8SCcyiOnNsdHyLSkeT06YN8RtTJuRjY6LdP3dTIl2-erVZiK2criOO/s1600/IMG_0049.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Add caption</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh98BFnOXW2c51EjhEdQUxab5TciEjlh4MK8u-Y2OEy-87rY4H1dZBYWfeaq1q3TMK5yslcFjcvKV8uKkjC0uy3hlqn_baVTWVR6jCCdgsRjWhQRYOrKAUGxwv6LYXaq_eno5d3TAmue_ri/s1600/IMG_0050.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh98BFnOXW2c51EjhEdQUxab5TciEjlh4MK8u-Y2OEy-87rY4H1dZBYWfeaq1q3TMK5yslcFjcvKV8uKkjC0uy3hlqn_baVTWVR6jCCdgsRjWhQRYOrKAUGxwv6LYXaq_eno5d3TAmue_ri/s1600/IMG_0050.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gavin in recovery</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzXfYEDSKY6j6t275VKEIIi8C-fbPhvuhOvf8B3RGCGGimXqniICQTziFT40lkgVhyphenhyphenDEdQ6EF69nOEytEAM6xWiXmgWbazqMSzT7xoYEpxtLHqsoN2qV5jhK8mOGGiRQ9fvaYlSElyqTuB/s1600/IMG_0066.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzXfYEDSKY6j6t275VKEIIi8C-fbPhvuhOvf8B3RGCGGimXqniICQTziFT40lkgVhyphenhyphenDEdQ6EF69nOEytEAM6xWiXmgWbazqMSzT7xoYEpxtLHqsoN2qV5jhK8mOGGiRQ9fvaYlSElyqTuB/s1600/IMG_0066.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gavin's present, a LAB kit..The next big Cancer Pathologist I think</td></tr>
</tbody></table>
<div class="MsoNormal">
<span style="mso-bidi-font-weight: bold;"><br /></span></div>
Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com1tag:blogger.com,1999:blog-9055360633119137805.post-64145105420735808872014-06-26T01:41:00.001+01:002014-06-26T01:41:23.438+01:00Day 1 in MD Anderson<div class="MsoNormal">
Hi All<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Day 1 over. We were up about 7am this morning getting
everything ready for our full day of appointments in MD Anderson. <span style="mso-spacerun: yes;"> </span>Gavin had seen the hospital from our hotel
room window and asked why we are going there and we told him “this is the place
where they will get rid of the thing in your tummy (the black thing as he calls
it..)<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We went to the hospital and were met by a lady called
Tiffany who we had been in contact with from home and who is a volunteer for
Livestrong. We had to fill out lots of forms to register Gavin for the day
ahead.<o:p></o:p></div>
<div class="MsoNormal">
Everyone we met so far has been so nice and friendly even
all the other people/patients in the hospital. <o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We met all the members of Dr Hayes Jordan's Team to discuss
Gavin and what he has had to date and what their thoughts are. <o:p></o:p></div>
<div class="MsoNormal">
At 4pm today then we met with Dr Hayes Jordan who is the
surgeon that will preform the surgery and HIPEC treatment on Gavin. She was
amazed by Gavin and they way he currently looks. Think all the nurses and
doctors have took a shine to Gavin already. Dr Hayes Jordan was amazing and
really explained everything in detail which was great. She really understands
what and why we are here. Gavin told her about the “black thing in his tummy”
and she said “well we are going to get rid of that Gavin”…and we are sure she
will.<o:p></o:p></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Tomorrow morning we have to be in the hospital for 7am as
Gavin is booked in for his first MRI Scan, he will also have to fast from 12
tonight so no food or drinks past 12pm which is hard but we are used to it now.
We have told him what’s going to happen and he is fine with it.<o:p></o:p></div>
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<!--StartFragment-->
<!--EndFragment--><br />
<div class="MsoNormal">
So far we are delighted and really impressed with the staff
and hospital, they are all so professional but most of all make us feel very
comfortable…</div>
<div class="MsoNormal">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_K5TpAH30Fr7SxH49vGYd145T9VwB_ub569xwEHeqv5oIs6NW1jPNMc0bF9N4yOyg3968nf5H0eBVJPV5A1hpxKqGTtRjs0L9pDwjWuUK2Kc5IRuiI6v-g5l3eUoR-_ru-wt0mk8hehZV/s1600/IMG_0010.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_K5TpAH30Fr7SxH49vGYd145T9VwB_ub569xwEHeqv5oIs6NW1jPNMc0bF9N4yOyg3968nf5H0eBVJPV5A1hpxKqGTtRjs0L9pDwjWuUK2Kc5IRuiI6v-g5l3eUoR-_ru-wt0mk8hehZV/s1600/IMG_0010.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">We received this card from the hotel staff after the met Gavin at dinner last night. They sent a present up to the room for him also. So nice..</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRFbFBy0JhedZtiEoU2kc_VnSq0QwaR8F70Ug9zpC1lio59-BUJ3aMPnjENt5pXXqFEsqu59hD9KsB-H8W7i546yN_vZFBf2JmX_64wC6neD-YyUxMdxeL8bE5h2sYmbX-jTEfnsPt0-32/s1600/IMG_0012.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRFbFBy0JhedZtiEoU2kc_VnSq0QwaR8F70Ug9zpC1lio59-BUJ3aMPnjENt5pXXqFEsqu59hD9KsB-H8W7i546yN_vZFBf2JmX_64wC6neD-YyUxMdxeL8bE5h2sYmbX-jTEfnsPt0-32/s1600/IMG_0012.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Getting ready for the day ahead</td></tr>
</tbody></table>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGBhISuuz0rLPlyc_1zTOMwkKcx4yxRB7ky1ILAUZv5lzPnAj71lNRJqMhXn6q_plI6-URN9NVhPkru8cBnGqSCuBqNBbvwncFsWNVgaYuHwOnQEzZ2ifrfYSSEyLzoqUYvB4e5PResWe8/s1600/IMG_0019.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGBhISuuz0rLPlyc_1zTOMwkKcx4yxRB7ky1ILAUZv5lzPnAj71lNRJqMhXn6q_plI6-URN9NVhPkru8cBnGqSCuBqNBbvwncFsWNVgaYuHwOnQEzZ2ifrfYSSEyLzoqUYvB4e5PResWe8/s1600/IMG_0019.jpg" height="320" width="240" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnjvnexlpIP7Y82gKQWlfx7yIoN2xFROkNvLeCdzUFberoUaZOLsYla1X15s4aZZFStnsFzH-Y6KM90aZebYfsiUrOJyzU7vAyZV8OO7AxgNih9jXUSTjBtzEsrcyzMpnP-r39nUX-X3et/s1600/IMG_0033.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnjvnexlpIP7Y82gKQWlfx7yIoN2xFROkNvLeCdzUFberoUaZOLsYla1X15s4aZZFStnsFzH-Y6KM90aZebYfsiUrOJyzU7vAyZV8OO7AxgNih9jXUSTjBtzEsrcyzMpnP-r39nUX-X3et/s1600/IMG_0033.jpg" height="320" width="240" /></a></div>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlSmknDJXB7iw-NDm_GPFNBLdlMuDoU-mdHT2tYYuyT2B3SxYBAJeEX43XQyHoyq70LIW8eBSLscfsgphae1KAjUXelymG6QJ36bjlNuZKLarDSxjvi8fLATQufrwfk0CV5L013e9VujuS/s1600/IMG_0038.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlSmknDJXB7iw-NDm_GPFNBLdlMuDoU-mdHT2tYYuyT2B3SxYBAJeEX43XQyHoyq70LIW8eBSLscfsgphae1KAjUXelymG6QJ36bjlNuZKLarDSxjvi8fLATQufrwfk0CV5L013e9VujuS/s1600/IMG_0038.jpg" height="320" width="262" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Big high fives for a great 1st day</td></tr>
</tbody></table>
<o:p></o:p>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com1tag:blogger.com,1999:blog-9055360633119137805.post-22117325227840344532014-06-24T03:52:00.001+01:002014-06-24T03:52:59.976+01:00Houston TeamGavinGlynn have arrivedWell after a very long day we are here.<div>Just a quick update to say we arrived safe and sound. Minus 1 bag but it's coming in the morning.</div><div>Aer lingus made the long part of the journey so comfortable for us all they were amazing and so nice.</div><div>We were met at the airport from a friendly face who drove us to the hotel and had loads of goodies waiting which was amazing.</div><div>Gavin is wrecked god love him he only slept for 1 hr on the plane..</div><div>We have tomorrow to get our barings and then 1st appointment is 9am Wednesday morning.</div><div>Thanks everyone for your messages and support. Now for some sleep...<div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZeAJPdVX__dbhjvnmfyv12aM-1JZDCE6zXQtQi_iWJZG5e2GRPeLqgtnkOasdBQWfxB9R5EphE9Gdbgyr4CTjIG_U7TTCQEBBAyOjHCv-GTzxed2r0D02tGdlCxTUIrpLZJ2sCLhvjDTM/s640/blogger-image--1140785401.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZeAJPdVX__dbhjvnmfyv12aM-1JZDCE6zXQtQi_iWJZG5e2GRPeLqgtnkOasdBQWfxB9R5EphE9Gdbgyr4CTjIG_U7TTCQEBBAyOjHCv-GTzxed2r0D02tGdlCxTUIrpLZJ2sCLhvjDTM/s640/blogger-image--1140785401.jpg"></a></div></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">In the cockpit when we landed.</div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjE1PgHHc2KjemnPFrdHwZe4XdnpNxim80iToVDNTaAtXs2pr3qjY-PDujLn_lXYLiC2PPvvNLb8JJPSGgRmBAvpbW2U13v-1hhqzegavdYdC99VBQtBy0FOL6nCPI8YXtTT_doUgQ-TJqo/s640/blogger-image-55993900.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjE1PgHHc2KjemnPFrdHwZe4XdnpNxim80iToVDNTaAtXs2pr3qjY-PDujLn_lXYLiC2PPvvNLb8JJPSGgRmBAvpbW2U13v-1hhqzegavdYdC99VBQtBy0FOL6nCPI8YXtTT_doUgQ-TJqo/s640/blogger-image-55993900.jpg"></a></div><br></div><br></div>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com13tag:blogger.com,1999:blog-9055360633119137805.post-89741183217173712292014-06-17T22:19:00.001+01:002014-06-19T09:53:22.983+01:00MYBOY<div class="separator" style="clear: both; text-align: center;">
<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px; text-align: start;">Please watch and share the below video with everyone you know and txt GAVIN to 50300 to donate €4</span></div>
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<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px; text-align: start;">This number will just work within Ireland but if you would still like to donate please click on the donate button on the main page.</span></div>
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<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px; text-align: start;"><br></span></div>
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<span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px; text-align: start;">Also take a selfie of you and your favourite little people and use </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/myboy" style="background-color: white; color: #3b5998; cursor: pointer; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px; text-align: start; text-decoration: none;">#myboy</a><span style="background-color: white; color: #333333; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 20px; text-align: start;">. </span></div>
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<b style="font-family: arial, helvetica, sans-serif; line-height: 13px; orphans: 2; text-align: -webkit-auto; widows: 2;"><span style="font-size: xx-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">100% of text cost goes to </span><span style="font-style: italic; vertical-align: baseline; white-space: pre-wrap;">Team Gavin Glynn</span><span style="vertical-align: baseline; white-space: pre-wrap;"> across most network providers. Some providers apply VAT which means a minimum of €3.26 will go to </span><span style="font-style: italic; line-height: 14.66181755065918px; white-space: pre-wrap;">Team Gavin Glynn.</span><span style="font-style: italic; vertical-align: baseline; white-space: pre-wrap;"> </span><span style="vertical-align: baseline; white-space: pre-wrap;">Service Provider LIKECHARITY <a href="tel:014433890" x-apple-data-detectors="true" x-apple-data-detectors-type="telephone" x-apple-data-detectors-result="1">014433890</a></span></span></b>Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com24tag:blogger.com,1999:blog-9055360633119137805.post-76757334775747329452014-06-13T09:22:00.000+01:002014-06-13T09:25:07.111+01:00Some information on the treatment for Gavin in MD Anderson Houston TexasWe have more news back from MD Anderson. We have spoken at length with the team and they want to see us on the 25th June with Gavin, so we are flying out to Houston on the 23rd.<br />
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They have advised that we will need to be there for 6-8 weeks which is a scary thought but we have done this time away before so now we will just get on with it.<br />
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MD Anderson Cancer Center is the only hospital in the world that has the expertise and experience to preform this HIPEC treatment on children so we are going to the best place.<br />
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The treatment involves open surgery to remove all the tumors in Gavin and then insert heated chemotherapy (42 degrees) into his abdominal region. This will kill any microscopic cells that remain.<br />
the surgery can take unto 12 hours to complete so this is very scary…<br />
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<span style="font-family: Calibri;"><span style="font-size: 15px; line-height: 22px;"><b>Below link explains and shows a animated video on the treatment:</b></span></span></div>
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<a href="http://www.hipectreatment.com/about-the-hipec-procedure/">http://www.hipectreatment.com/about-the-hipec-procedure/</a></div>
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As most people already know the cost of medical care in the US is massive. The HIPEC treatment alone will cost $400,000…We also will have to pay $25,000 on the 25th for some initial tests before the procedure.</div>
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When we seen these figures I thought they had put an extra 0 in my accident but this was not the case.</div>
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It is scary to think we need this amount and I know with all the support of everyone fundraising and donations that we will get it, but for now our main focus is Gavin and this treatment will work. If I have to sell my own organs to pay for it i will..</div>
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It is going to be very hard to leave Conor and Lucy again, we have told them we need to go away with Gavin for treatment, even though they are still very young they really understand what has to happen.</div>
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Hopefully we will be able to fly them out once Gavin is over the heavy treatment part so we can all be together.</div>
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This is our only hope of saving Gavin's life now so please god this works...</div>
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Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com11tag:blogger.com,1999:blog-9055360633119137805.post-77722980251950407282014-06-09T21:21:00.001+01:002014-06-09T21:21:25.780+01:00Updates so far <br />
Gavin has been taking his tablets every morning without any problems. We have to check his bloods and kidney functions every week.<div>
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Below is some pictures of what we need to do every week. Gavin is so used to this routine now he just lies back and then gives me instructions on what to do…e.g.: "you need to use another wipe" or "time to clean this part" he is so funny but knows exactly what needs to be done.<br /><div>
Most people don't realise when they see him running around that this line has now been connected into his chest for nearly 3 years now..so it is a real part of him and he is very protective of it.</div>
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Our next steps this week is to speak with some more consultants overseas about what our next steps are.</div>
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We have had responses back from the 2 New York Hospitals to say that they cannot offer any treatment for Gavin which came at a big stock to us.. But we have had some information back from MD Anderson in Texas about a specific treatment protocol they have for cases like Gavin's so we have a lot of work to do with them on this first.</div>
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We will hopefully know more by the end of this week.</div>
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<tr><td class="tr-caption" style="text-align: center;">Cleaning Freddie (hickman line)</td></tr>
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Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com4tag:blogger.com,1999:blog-9055360633119137805.post-46643941063795250302014-06-09T21:09:00.002+01:002014-06-09T21:24:26.916+01:00Great Weekend <br />
We had a super weekend thank God after a very stressful time last week. We had a lot of contact back and forward last week between hospitals in the US so we really needed some time to re group and clear our heads to make a plan.<br />
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On Friday night we were all VIP guest to the Circus Gerbola in Greystones. It was a brilliant show and they really pulled out all the stops for Gavin, Conor and Lucy which was amazing. Then on Saturday night Paul Byrne form Greystones arranged a few bands to play in the circus tent and all donations went to Gavin.</div>
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On Saturday morning we went to Galway.<br />
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Last year a man called John Killilea made Gavin's Superman bed and had been in touch with us lately about doing a fundraiser for Gavin.</div>
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He had planned a charity cycle with his club Tri Lakes Triathlon Club in Galway to do a 50klm and 100Klm cycle and raise money for Gavin.</div>
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We decided to go down and support John and all the other cyclist at the weekend.</div>
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John had arranged for the kids to go on a beach buggy in a field near their house, as you can see from the pictures below they loved it. John and his wife Edel and their kids and extended family and friends really pulled out all the stops for us while we were down and we are very grateful to them all and everyone who helped and participated in the cycle on Sunday.<br />
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<span class="fcg" style="color: grey;">John & Edel Killilea<span style="font-weight: normal;"> </span></span></h5>
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Team Gavin Glynnhttp://www.blogger.com/profile/17789279295630691098noreply@blogger.com0