We created this blog to document our journey with Gavin (and all the Glynn Family) while he battled his fight against Embryonal Rhabdomyosarcoma (Soft tissue tumor)
Wednesday, October 21, 2015
superhero in the sky
Though we are all still grieving and missing you ever second of the day their is one thing that will never be taken from us.. And that is the memories of all the happy times we had together. All the smiles and laughter your brought to us all.
We all miss and love you so much buddy. Forever in our thoughts, hearts and dreams.
You will never be forgotten.
Love you buddy. Mum, Dad, Conor & Lucy xxxx.
Big thanks to Robbie Doyle for writing and singing this beautiful song about Gavin (Superhero in the Sky).
Thank you mate xxx
https://vimeo.com/142997405Superhero in the Sky
Tuesday, July 14, 2015
The Gavin Glynn Foundation Office
Big thanks to Nigel Elliott for converting Gavin's old bed into a desk.
The bed was made for Gavin a few years ago by John Killilea through Aoibheann's Pink Tie and we didn't want to get rid of it.
We're So delighted with how it has turned out.
Our buddy will be with us all the way while we help as many families as we can.
Now to buy office stuff
Wednesday, December 24, 2014
Monday, November 10, 2014
Monday- Start of a new week..
- People Tilt their heads to the side when the see you or talk to you.
- "Are you sleeping"...
- "Are you eating"...
- Rub your arm or back for some reason while talking to you with their tilted head.
Friday, October 31, 2014
Wednesday, October 22, 2014
Rest in peace our beautiful baby
Wednesday, September 24, 2014
4 weeks back in Ireland this friday
Saturday, September 13, 2014
Update on Gavin
Sorry for not updating everyone, we wanted to wait until we were back home and settled.
We arrived back home 2 weeks ago today. Once Gavin was comfortable after his operation in Arnold Palmer hospital, the staff and Make a Wish arranged an air ambulance to take us back home. Gavin was very happy to travel in a plane in his bed and was very comfortable all the way home thanks to JET ICU for the great trip. We were so well looked after by all the doctors, nurses and play specialist staff in Arnold Palmer and have made many friends so we thank you all for your help during our stay.
We were then picked up in Dublin airport by BUMBLEance and brought to Crumlin hospital with Gavin’s Gardai friends in front as they wanted to welcome him home. We have spent the last 2 weeks in the ICU Ward as Gavin had another operation last Monday. The surgical team and all the nurses have been amazing and really looking after Gavin very well.
We are now out of ICU and in another ward. Gavin is in great form as always and doing well. He is sitting up watching lots of DVD’s and keeping all the nurses entertained and me and Jayne…bossing us around which is great to see.
The plan now is for the surgical team to monitor Gavin over the next 10 days and see how everything is going and then hopefully we will be able to go home.
“We would ask that any online or press media to be mindful of what quotations you print please as we need to be careful of Gavin’s brother and sister and what they can read”.
Sunday, August 24, 2014
Update on gavin
These aggressive new tumours have already grown rapidly and have caused blockages in Gavin's abdomen.
We travelled to Orlando on Sunday as Gavin was granted a trip to Disney World for the family, by "Make a Wish".
But unfortunately he had to be brought by ambulance to the Arnold Palmer Hospital in Orlando before we could get to the park, with abdominal complications. He has had surgery and is currently recovering in ICU.
We are not sure how long he will be in the hospital but our aim now is to get him well enough to travel home to Ireland.
Once we know what is happening next we will be able to update everyone again. Thanks everyone for your support and prayers.
Thursday, August 7, 2014
Calling for people to join TeamGavinGlynn for this years Dublin City Marathon
So this morning early start 6am we were all up and into the hospital. Gavin had to be sedated so the tube could be replaced so he had to fast and no liquids from last night.
He's all good now and just about to leave he's happy that his super brother and sister are here minding him.
|Awake and all ready to leave|
Tuesday, July 29, 2014
We are now outpatients wooohoo
We have a job to do and build him back up now to his old chubby self again, but we can do this much better outside the hospital.
We have also just moved into a rented apartment, which is close to the medical center so we have a bigger space.
And the best news of all is that Conor and Lucy are coming over this Friday…WOOOOHOOO. Jayne’s sister Deborah is flying them over.
We miss them so much. It’s been nearly 6 weeks now, and even though we speak every night, it’s just not the same. We cannot wait to see them, my god they will be killed with love and hugs they will not know what hit them:)
So the plan for now is to have regular visits to the hospital for checkups and check how Gavin's bladder and ureter are healing. We cannot start his chemotherapy until they are healed better. We are unsure yet if he will require more surgery to fix them.
So at long last we are now on the road to recovery and, more importantly, back on the road home to Ireland.
We are missing everyone back home a lot especially all our friends and family, but we are being well looked after by our extended Houston Irish and Police families, they are amazing support to us.
|Gavin when we told him we were leaving the hospital|
|Gavin and me chilling in our apartment|