We created this blog to document our journey with Gavin (and all the Glynn Family) while he battled his fight against Embryonal Rhabdomyosarcoma (Soft tissue tumor)
Reference Websites about Rhabdo
1: Focusonrhabdo
Focus On Rhabdo is a community-anchored advocacy group working hand-in-hand with our Advisory Board and Council - the leading rhabdo researchers and clinicians from around the world - to make this disease universally survivable.
2: Liddy Shriver Sarcoma Initiative
The Liddy Shriver Sarcoma Initiative was founded in 2003. Its mission is to improve the quality of life for people dealing with sarcomas around the world. The Initiative increases public awareness of sarcoma, raises funds to award research grants, and provides support and timely information to sarcoma patients, their families, and medical professionals. These efforts are achieved through collaboration with numerous individuals and organizations that share a similar vision.
3: Sarcomaalliance
2: Childrens Cancer and Leukaemia Group - Soft Tissue Sarcomas
3: European Paediatric Soft Tissue Sarcoma Study Group Structure
4: Rhabdomyosarcoma Booklet
5: ACOR
ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders.
Subscribe to:
Posts (Atom)
This comment has been removed by a blog administrator.
ReplyDelete