Friday, June 13, 2014

Some information on the treatment for Gavin in MD Anderson Houston Texas

We have more news back from MD Anderson. We have spoken at length with the team and they want to see us on the 25th June with Gavin, so we are flying out to Houston on the 23rd.

They have advised that we will need to be there for 6-8 weeks which is a scary thought but we have done this time away before so now we will just get on with it.

MD Anderson Cancer Center is the only hospital in the world that has the expertise and experience to preform this HIPEC treatment on children so we are going to the best place.

The treatment involves open surgery to remove all the tumors in Gavin and then insert heated chemotherapy (42 degrees) into his abdominal region. This will kill any microscopic cells that remain.
the surgery can take unto 12 hours to complete so this is very scary…

Below link explains and shows a animated video on the treatment:


As most people already know the cost of medical care in the US is massive. The HIPEC treatment alone will cost $400,000…We also will have to pay $25,000 on the 25th for some initial tests before the procedure.

When we seen these figures I thought they had put an extra 0 in my accident but this was not the case.
It is scary to think we need this amount and I know with all the support of everyone fundraising and donations that we will get it, but for now our main focus is Gavin and this treatment will work. If I have to sell my own organs to pay for it i will..

It is going to be very hard to leave Conor and Lucy again, we have told them we need to go away with Gavin for treatment, even though they are still very young they really understand what has to happen.
Hopefully we will be able to fly them out once Gavin is over the heavy treatment part so we can all be together.

This is our only hope of saving Gavin's life now so please god this works...

11 comments:

  1. How can we help out moneywise?

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    1. hey Angie we have a Paypal button on this page for donations, if you can share the story it would be great and ask other people to donate. Thanks so much

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  2. Hi there, I am friends of Simon and Laura Macmahon from Australia and currently live in Houston with my husband. We would be more than happy to help in anyway that we can whilst you are here, even if it is to just go out for dinner etc.. Please feel free to get in touch if you need some time away from the hospital - we can have you over for a home cooked meal - anything that will make your time here more bearable. My email address is alikatekennedy@gmail.com and my mobile number in Houston is 8328516290. Take care, Ali Livingston.

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  3. Hi, I am Adrian and Susan Boylan's sister (& sister-in-law). I am far from Texas, out on Eastern Long Island, but if I can help you navigate in any way while you are here please call me. Cell phone 631-766-7776. You are in a very good place with MD Anderson. I have a friend who recently went there from NY and is well. Each of these great cancer hospitals has its individual specialty's & strengths. I am so glad you found the right one. My thoughts and prayers will be with Gavin and all of you. I look forward to good news.

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  4. Hi guys .. Im Gavin coventrys sister .. If there is anything the family need while your gone just shout .. Best of luck with everything. We'll keep you all in our thoughts and prayers xx

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  5. Trying to donate with Visa card ,finding it difficult as only pay pal showing.

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    1. hi sorry yes paypal is the only option and we also have idonate of that works for you
      http://www.idonate.ie/1043_gavin--s-fund--team-gavin-glynn-.html

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  6. Best of luck. I hope the power of social media helps you to raise the money needed and get your boy the treatment he needs. Mum of 3, Dublin.

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  7. Hi! I seen your campaign on my cousins profile in Ireland and I just had to contact you. I may have some hope for you with your little boy. There is a spiritual healing center in Brazil which is run by the world famous healer john of god. I just know that he can help your son, possibly even via distance healing I'm not sure. But many people have been healed of in curable diseases such as cancer, aids, brain damage etc and I myself just got back from a trip there for my own healing and I have made amazing progress for myself. If you want to know more and to get in contact with me I would love to assist you in any way I can, my email address is jessicarechichi@hotmail.com
    Xxxxx

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  8. I forgot to reply and you certainly won't have to pay a cent for ur sons healing! John of god don't charge any money. Of course you will have to pay for the trip but that is nothing compared to $400,000 !!! OMG that is crazy ridiculous !!!! I know your son can be healed by john I just know it and I hope you get in contact with me,
    Bless you xxx

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  9. Also if you are in states - here is the link to site that Texas friends set up for Gavin - http://www.youcaring.com/medical-fundraiser/texas-support-for-little-gavin-glynn-/193077

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